The mother of the child from Tenerife with cystic fibrosis who denounced Public Health in the Office of the Prosecutor has demanded explanations from the Canary and state governments about why this Friday's financing in Orkambi was not discussed in Madrid, and has announced that it will expand its complaint and hopes that the Justice will punish those responsible for what happens to their son.
"Outrage, bewilderment, anguish and anger". This is how Angeles Aguilar, the nurse from Tenerife, whose son Ricardo, aged 12, feels the health authorities have denied him the Orkambi, only drug that since 2016 allows to stop your illness.
She and 600 other families throughout Spain were waiting this Friday for the state and regional governments to address the financing of this medication in Madrid at a technical meeting, but in the end it has not been discussed; Therefore, it demands that both the Canary Island Health Minister and the Minister of Health go out and give explanations of what is happening.
"If the minister told the counselor that it was going to be discussed at this meeting, why was it not on the agenda or discussed in the Price Commission? Families and the sick deserve to be explained and politicians give the face, "he says ..
Angeles Aguilar, who last week reported to the authorities before the Attorney General about the deterioration of the health of her son Ricardo, recalls that she is a nurse and that if she leaves a patient to die, it costs her jail, but it seems that "politicians have impunity ", the Mint.
"The 600 patients affected with cystic fibrosis in Spain and their families deserve respect and who inform us in order to make decisions." You can not play with people's health in this way, especially when there are children dying, like my son", says this outraged mother from Tenerife.
Aguilar announces that will expand its complaint in the Office of the Prosecutor with new documentation and with this lack of transparency and new delay in making a decision the authorities. "Those affected demand us so much Baltar as the Minister of Health go out and give public explanations of what is happening. Because if the minister told the counselor that it was going to be discussed at this meeting, why was it not on the agenda or discussed in the Price Commission? Families and the sick deserve to be given explanations and politicians give their faces, "cries this mother.
His claim that this drug be dispensed will now reach the Senate, where Senator Antonio Alarcó from Tenerife has informed him that his party will propose that the State Government be urged to pay this drug to all patients with Cystic Fibrosis with its most serious mutation: f508D