The Luzon Foundation on Tuesday organizes a charity concert by the soprano to raise funds in the fight against Amyotrophic Lateral Sclerosis (ELA) and will be chaired by Doña Sofía
If you look at one, the figures for Amyotrophic Lateral Sclerosis (ALS) are chilling. About 4,000 people diagnosed in Spain, 3 daily deaths, 3 new diagnoses a day. A neurodegenerative disease today incurable and whose life expectancy is 3 to 5 years; Some may live longer and others die in just a few months. As explained by María José Arregui, vice president of the Luzon Foundation, “ELA progressively immobilizes those who suffer from it. Those affected are losing the ability to speak, move, eat, breathe on their own … However, it keeps their cognitive function intact, they can think and feel, keeping their intellectual and emotional capacity intact. The patient lives in a prison that is his own body. ” And he said: “ALS is the disease of the weakest of the weak and, unfortunately, its survival is directly related to the economic capacity of the patient and the family. This in fact and has to give us to make a deep reflection. ” That is why from the Luzon-United Foundation against ALS, “we want to convey that this patient must have a quality of life that allows him to continue living if he wants, but that it is not the economic capacity that determines his death,” he explained. Arregui
For this purpose they have organized a charity concert by soprano Ainhoa Arteta, accompanied by Andrés Salado in the direction of the orchestra, to finance projects that improve the quality of life of those affected by this terrible disease and their families, in addition to raising funds for research. The concert will be held on February 18 at the National Music Auditorium under the presidency of S.M. Queen Doña Sofía.
In the presentation of it the singer said she was tremendously grateful to life. “I have always been aware that I was not only a professional singer, I was clear that my voice and my person could serve to help, that a part of my profession could be worth helping to get people’s attention, to give voice to Causes like this and that satisfies me and fills me a lot. Being able to share these magnificent musical works and contribute to humanly necessary causes than other things that we live every day, sometimes gives me much more satisfaction than the professional field. I feel that the honor is mine and I feel privileged. ”
Its most supportive side surfaced and pointed out that “I I believe in the example that Francisco Luzon himself is giving, of life and optimism in the face of something as terrible as ELA and that can affect any of us. Despite what has happened to him, he lives life as a gift and gives us a life lesson every day. Hopefully on the 18th, many people come to the concert and we can raise funds for the investigation, ”he added.
On the other hand Arteta claimed a Patronage Law in Spain: “I am not of any party, nor of any color. I am a citizen and I believe that this law is necessary for many causes, including “. In this sense, Arregui added, that given the economic need, more involvement of the Administration would be needed. “That is our great struggle, to establish a relationship with the state administrations, both national and regional, so that the needs are gradually being implemented and giving the quality of life that a patient needs.”