"Justice finally arrives" for Isabel González after four years of struggle


"I have gone from frustration to joy, this has been like a roller coaster, four years of sweat and tears, but finally justice has been done." That's how I valued yesterday Elizabeth Gonzalez the Royal Decree published last Wednesday, February 23, in the BOE, which allows him to recover the aid he lost when his daughter, with 100% physical disability, turned 18 years old. Through this rule, the Government has made retroactive the extension of aid for caring for children with serious illnesses until the 23 yearsTherefore, families whose children were 18 years old before the law was changed will be able to access this benefit.

Isabel González, mother of a young woman from Gran Canaria suffering from spinal muscular atrophy, with a recognized disability of 100%, has been fighting for four years to expand the aid for families with children affected by serious illnesses, beyond the age of majority . This battle seemed to have come to an end on January 1, when the modification of the General Social Security Law was published, which extends the benefit up to 23 years of age, agreed on December 28, 2021. However, the joy was short-lived, since the amendment did not provide for the establishment of a transitory regime for those cases in which, prior to January 1, 2022, the economic benefit had been extinguished because the minor had reached the age of 18. This was the case of Isabel's daughter, who came of age on July 15, 2021, a few months before the modification was registered.

Interpretation of the text

«We were looking forward to the publication in the BOE of the General Budget Law -which introduced the modification that extended the benefit to 23 years-, but then denials begin to arrive, and mine was the first, because my daughter had already turned 18 years and my insurance company informed me that the benefit had expired prior to changing the maximum age of 23 years. Many of us stayed out and it was crazy, because in the same circumstances some of us were denied and others accepted, since each mutual interpreted the text in a different way. It has been such a great injustice, that I have had a bad time, because you see your daughter who needs you and who does not support you, I do not wish it on anyone », she stressed.

González promoted a campaign on the platform in 2019 Change.org focused on the need to change the aforementioned law and had more than 100,000 signatures. “Interestingly, I, who had promoted this movement, was the one who received the first denial. With this rectification, published last Wednesday in the BOE, even if our children have turned 18 before the law was changed, we have the right to receive aid », he pointed out.

The Government makes retroactive the extension of aid up to 23 years of age to those affected who have reached the age of majority before the modification of the law


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The daughter of Isabel González, who this year began studying for a degree at the University of Las Palmas de Gran Canaria, constantly needs help. The quality of life of the young woman has worsened in the course of the last year as a result of the degenerative disease that she suffers from, a pathology that the doctors diagnosed with only 16 months of life. She has undergone surgery on her spine and now she has problems with her hips, so she is awaiting another intervention.

In order to attend to her, her mother decided to reduce her working hours to 99.99% to dedicate all her time to the young woman, a right included in Royal Decree 1148/2011, of July 29, for the Application and Development in the System of Social Security of the Economic Benefit for Care of Minors Affected by Cancer or other Serious Illness. However, on July 15, 2021, she had to return to her job, causing a level of stress and depression that led her to take medical leave.

Compensation

The benefit that you can now recover is an aid that compensates for the loss of income suffered by mothers and fathers, who are forced to reduce their working hours and their salary to directly, continuously and permanently care for the minor in their care. , affected by cancer or other serious illness.

A commission of those affected, in which Isabel González participates, will soon begin meetings to eliminate the age limit on benefits


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Now the next step will be to fight to eliminate the age limit on this aid, and for that they have already formed a commission that will meet next week, made up of five mothers and two fathers of those affected, from the Canary Islands, the Basque Country, Seville and Madrid. . «We positively value that they have rectified, but we are going to continue fighting so that the age limit is removed. There are two years left in the legislature and we have to achieve it. The reality is that our children are not going to be cured, they are degenerative diseases, they are getting worse, and the older they are, the more care they are going to need," said Isabel González, one of the members of the aforementioned commission of those affected.



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