Sun. Dec 15th, 2019

Face having a child with a disability


If you are one of those warrior mothers who knows the phrase well, my son has a disability, I will tell you some things that only a disabled person can explain to you and also, I will do it in the first person so you can see how the champions of My parents, to whom I owe everything.

According to the report of the Observatory of Disability, one in 10 Spaniards has some type of disability. Did you know that the figure was so high? Probably not, but surely you didn't know that I have a disability myself. You are right.

What is disability in children?

According to the World Health Organization, Disability is a general term that covers deficiencies, activity limitations and participation restrictions.

  • Deficiencies are problems that affect a body structure or function
  • Activity limitations are difficulties in executing actions or tasks.
  • Participation restrictions are problems to participate in vital situations.

Therefore, disability is a complex phenomenon that reflects an interaction between the characteristics of the organism and the characteristics of the society in which it lives.

Nystagmus, this is the cause of my disability

To give you a clear example of a clear and simple disability, I will analyze my case:

  • Deficiencies: Nystagmus is an uncontrollable and involuntary movement of the eyes due to a malfunction in the brain areas that are responsible for controlling movement.
  • Activity Limitations: The movement of the eyes affects my visual acuity and therefore, the vision from afar, which limits me to perform multiple actions.
  • Restrictions of participation: This problem of distant vision makes it difficult for me to carry out multiple activities and one of the easiest to understand is to recognize the face of those known by the street from afar, so you know, if we know each other and I do not greet you, most likely not I recognized you.

I think this makes clear the concept and it sure helps you do this same analysis exercise with your child.

Now tell me Do you think your child's problem associates a disability?

I was not aware my problem could be considered a disability until about 35 years and after several years married to my wife, who is an ophthalmologist

Why?

  • First, because when I was little, this disability wasn't even talked about. The world has changed a lot in the last 40 years and some things have gone better
  • Second, my parents have never had that concept in mind and have not transmitted it to me either. Thank you both for how you have done things with me.
  • I have never set limits and have never lived with a feeling of disability. I'm not going to say thank you for having it. I don't know if I didn't have it, I would have done things differently or I would be different myself, but I am the way I am with her and I wouldn't change anything.

I tell you all this, because if your child has a disability, you must be clear and know to do everything possible to meet their needs and be able to manage all the aid to which you may be entitled, but no, do not treat it differently just because you are disabled . Treat it as you need and deserve.

My son has a disability. Where do I begin?

According to the WHO World Report on Disability, more than one billion people live worldwide with some form of disability.

  • This represents 14% of the world's population
  • In a class of 25 students, you are likely to find 3 children with disabilities.

All these data make it clear that there is acceptance of disability as another part of life and our society. You can all be parents of children with disabilities and there will be more and more children of disabled parents.

Now the question is how can you deal with disability?

Can anyone stop thinking how family life conditions having a child with a disability? No one is prepared for that. My parents were not either.

Everything was fine at birth but soon, they noticed how something was wrong with me, as it was said at the time. He also stuck his right eye.

You can imagine the concern of my parents. From a very young age they moved heaven and earth to find answers to their questions in the 80s.

They went through thousands of vicissitudes until the situation was more or less channeled. They went around ophthalmologists from all over Spain with better or worse luck until I was followed up at the Barraquer Ophthalmology Clinic.

At that time we had to go at least once a year from Cádiz to Barcelona. This meant saving all year to take the whole family out by train or car until at age 18 and after starting Medicine, I decided it was time to leave.

It is admirable how mothers act in the face of a child's disability. A mother does not consider how to accept a child with a disability, she simply thinks about her child. In fact, he doesn't usually think about these kinds of issues. It focuses on your child's needs.

I recomend you:

  • Get informed: Find reliable information about your child's problem and don't believe everything you read on the internet or tell a friend. Your child's health is much more important than a hairdressing gossip. My parents would have needed much more information
  • Associate: Union make force. Families in the same situation understand each other much better and help others but do not want to become an expert who knows everything. You can do a lot of damage if you are not really a specialist in the field.
  • Act: Never accept a no for an answer. Do not doubt your impression. Don't settle for half measures. Do everything in your hand for your child
  • Search for the best professionals: There are magnificent professionals in public and private health. In Spain there are great experts, look before going to the end of the world.
  • Forget the disability. Think of your son: Your child is much more than the problem he has. When you think about him, do it in his needs, not in the problem. This is what my parents have done and I guarantee it works.
  • Take care: Your child needs 110% of your abilities. You can't afford to leave. Eat healthy, sleep the necessary hours, exercise and look for fun times. Even in the most negative situations, you need these issues.
  • Avoid scammers and sell fumes: I take care of you because it is very easy to do demagogy with many medical issues and there are health hoaxes everywhere
    • I see every day in the consultation little or poorly informed families about the ADHD to those who tell them that the medication is a drug or a doping.
    • I find myself as supposed professionals tell the parents of an autistic girl that sugar is poison and that they need therapy with an osteopath to cure the intracranial hypertension that he notices.
    • I hear how there are those who say that all learning problems are due to visual or auditory alterations …
    • I see how scammers cheat desperate families with miracle diets or therapies that are useless.

I have a child with a disability. Legal aspects

Are you one of those who thinks that request the disability certificate Is it bad for your son?

I understand the reasoning that some of the parents of my consultation tell me but you have to be realistic. In most cases, you feel a knot in the stomach when you have to put black on white that your child has a disability

If your child has a problem, you have to get all the means available to help him overcome it. Not doing so will not change anything and having it does not have to negatively affect any aspect of your life.

Not requesting the one known as handicap can make it even more difficult to have the necessary resources to compensate for your child's difficulties.

Let's make these things clear by seeing some aspects that are fundamental to understand.

Types of disability What do they mean?

There are different types of disabilities that can officially recognize your child. Here is a list of all.

  • Physical disability.
  • Sensory disability
  • Intellectual disability
  • Psychic disability
  • Visceral Disability
  • Multiple disability

Of all these, the three types of disability that are valued for legal purposes are physical, psychic and sensory

  • Physical disability:
    • It occurs when a person has a physical state that permanently and irreversibly prevents them from moving with the full functionality of their motor system. It affects the musculoskeletal system and especially affects the extremities, although it can also appear as a deficiency in the mobility of skeletal muscles.
    • Most of the physical disability (more than 80%) is caused after birth by common conditions and accidents of all kinds.
    • More minority, these affectations may originate during pregnancy, due to genetic problems or during childbirth.
  • Psychic disability:
    • It is considered that a person has a psychic disability when he / she has "a developmental disorder characterized by significant limitations in both intellectual functioning and adaptive behaviors and generates anomalies in the learning process understood as the slow and incomplete acquisition of cognitive skills during human development that ultimately leads to substantial limitations in current development.
    • It is characterized by a very variable intellectual functioning that takes place together with associated circumstances in two or more of the following areas of adaptive skills: communication, personal care, home life, social skills, community use, self-government, health and safety , functional academic skills, leisure and work ".
  • Sensory disability:
    • Sensory disability corresponds to people with visual and hearing impairments. There are scales to mark different degrees of sensory disability

The disability law makes clear the rights and benefits of workers with children with disabilities. A special case is the consequences of the new law for mothers with disabled children.

Degrees of disability. What are they and what do they mean?

Although any health problem can trigger a disability, it cannot always be considered as such from a legal perspective. That is why, you have to graduate the level of difficulty in each case. I tell you.

  • Grade 1 disability:
    • The level of disability is null: the child suffers damage, has symptoms, signs or sequelae, but does not justify any difficulty in performing daily activities and can be done in its entirety.
  • Disability Grade 2:
    • The level of disability is mild: the person suffers damage, has symptoms, signs or sequelae, and it is shown that there is some difficulty to perform daily activities, but can perform them in full.
  • Grade 3 disability:
    • The level of disability is moderate: the person suffers damage, has symptoms, signs or sequelae that cause a significant decrease or the complete inability to perform daily activities. Even so, the person is independent in self-care activities.
  • Disability Grade 4:
    • The level of disability is serious: the person suffers damage, has symptoms, signs or sequelae that cause a significant decrease or inability of the person's ability to perform daily activities. In this case, some of the daily self-care activities may be affected.
  • Disability Grade 5:
    • The level of disability is very serious: the person suffers damage, has symptoms, signs or sequelae that prevent and make it impossible to carry out daily activities.

Disability Certificate Benefits

The Certificate of Disability Degree is a document that accredits the status of the holder for administrative purposes. Depending on the degree of disability you can opt for a number of advantages and benefits.

Although the percentage of disability assigned to each person can vary from zero to 100, the limits that the law uses to recognize certain advantages are 33% and 65%.

  • Disability of 33%: Aids for children with disabilities of 33% or more reach different areas.
    • The benefit for a dependent child with a disability of 33% includes benefits in personal income tax, reductions or exemptions of taxes and / or taxes, municipal taxes, education, housing, employment, facilitation of the acquisition of the status of large family
  • 65% disability: Aid for a child with a disability of 65% or more includes the above and adds an economic contribution adjusted to% of the same.

Procedure to request a child's disability

To obtain the disability certificate, it is necessary to initiate an administrative procedure that involves a medical, social and psychological assessment of aspects such as age, family environment, work and professional status, educational and cultural levels, as well as the usual environment of Person with Disability. All these elements will determine the total degree (percentage) of disability.

Phases of the disability application

The process usually has an average duration of about 6 to 8 months, although it may vary depending on the autonomous community in which it is carried out. It can start at any time of the year and includes the following phases:

  • Contact with the competent body of the Autonomous Community (Ministry of Social Affairs of the City Council in question or Base Centers for Attention to Persons with Disabilities closest to the applicant). Download the national list of Base Centers
  • Application submission
  • Recognition and assessment
  • Technical-Optional Opinion
  • Processing of Hearing
  • Obtaining the resolution

The documents that will be requested are the following:

  • Photocopy and original of the DNI of the applicant or legal representative. Failing that, the Family Book.
  • Reports (medical, psychological and social).



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