an "attack on solidarity" with consequences for the most vulnerable
"It is an attack on solidarity, an irredeemable betrayal. The real victims are not the people who have given their money, who may feel upset. But the group of rare diseases, which works so that these patients —many of them minors— they can access what the public health system does not manage to give them. " Beatriz Fernández speaks with knowledge of the facts. He lost his daughter to Isabel at the age of five as a result of Tay-Sachs disease, a genetic ailment that affects one in 320,000 newborns. That is, one of those so-called rare diseases.
Paco Sanz, the man with 2,000 tumors, admits that he cheated and accepts two years in prison